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Friday, September 13, 2013

"I write this I am preparing for another hospitalization."

From: Joyce and Herbert Stein []
Sent: Friday, September 13, 2013 9:43 PM
To: Jonathan Blum, Deputy Administrator Director - CMS; Madam Secretary Kathleen Sebelius - HHS
Subject: "I write this I am preparing for another hospitalization."

Dear Jonathan,

I have copied and pasted another email below that I just received.  It too is self-explanatory.

I shall not give up.  I owe it to my spouse Joyce and Amy, Julie, Tami and all the other patients wanting a chance to live out their lives in peace, wellness and with dignity.

We need your help now…no more kicking the can down the road.  We need another individual with the compassion and understanding as exhibited by Dr. Daniel Schultz to do the right thing.



Joyce and Herbert Stein

1008 Trail more Lane

Weston, FL 33326-2816

(954) 349-8733



8:29 PM (September 13, 2013)





to me



I listened to your phone call with Jonathan Blum of CMS.  Me and my family are waiting on pins and needles to find out if the "Compassionate Use" document will be signed .  It is all I can do to follow your blog, but it has given me a glimmer of hope.   As I write this I am preparing for another hospitalization.  It will not help me other than to keep me safe for a few weeks.  Mr. Blum and the other "powers that be" need to understand the cost to so called treat my depression will continue to increase until it is greater than the cost of VNS.  I had not been hospitalized or had ECT for the five years my VNS worked.  

My battery died two years ago.  Since then I have been hospitalized once and am home bound and practically bed bound.   My very life depends on getting my VNS replaced soon.  VNS saved my life!  I just wish Mr. Blum and the others would see that I am a human being and I am pleading and begging for my life.  

Bless you for your advocacy.   As always, you have my permission to publish or use this email in anyway that will help.

Tami Gee

8913 Fresno St

Fort Smith, AR




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